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The State We're In - To die or not to die

On air: 3 October 2009 (All day) - 9 October 2009 (All day)

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The State We’re In, 3 October 2009. The relaxing of euthanasia laws in the UK has rekindled debate over assisted suicide. Jonathan speaks to a Dutch doctor who helps people die and to an American disability activist who finds the practice threatening.
 

  • Bert Keizer, a doctor at a chronic care facility in the Netherlands
    Bert Keizer, a doctor at a chronic care facility in the Netherlands
  • Stephen Drake of the disability rights group Not Dead Yet
    Stephen Drake of the disability rights group Not Dead Yet

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This week's theme is "The right to design your children"


“I’ll have a boy please”
Dr Jeffrey Steinberg is a man who can fill this order – he uses embryo screening to help parents select the gender of their children.

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Girl redesigns herself
Maarah was 10 when she decided to re-design her body by starving herself. She’s now 15 and at a healthy weight, but still struggles with it.

More on the story.

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A lifetime of regret

Sian Hughes terminated her pregnancy after her foetus tested positive for Down’s Syndrome. She immediately regretted it and later wrote a prize-winning poem about her regret.

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Two fathers
Aad and Ron Dissel de Boo take in children no one else wants. For them, it’s not about designing the child you want, but loving the child you have.

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Discussion

Anonymous in AK 12 October 2009 - 3:18am
What a moving wonderful show. My little brother was "an accident," born with significant birth defects and my mother later told me she wished he had died as an infant to save him from all the suffering he was destined to go through. She had no control however. He survived, but struggled with the consequences and he never really recovered, at least emotionally. He felt he did not fit in and even tried physically to alter his appearance, as was explored on another one of your stories today. It did not work for him, he was miserable and at age 16 he chose to die. It destroyed our family and yet I still believe he had the right to die. With his death, our family buried our future. I don't believe any of us have the control, no matter what the science tells us, to design our children, ourselves or our future. Nature always finds a way to rule. Thank you for an exceptionally sensitive and thought-provoking show.
MC on WAMU 5 October 2009 - 9:55pm
I listen to the show every week and this is the first time I have been compelled to write. All of the stories were captivating. I appreciate the diverse viewpoints the show brings, such as the contrasting opinions on the right to die. I was riveted by Mara's description and awareness of her own anorexia. Thanks for bringing more understanding to the condition. Both Sian Hughes and TD's comment above I have found very thought provoking. I look forward to future episodes on such engaging topics.
Anonymous 5 October 2009 - 5:22am
All that live must die, passing through nature to eternity.
WM listening on WAMU 4 October 2009 - 10:30pm
Quality programming as I've come to expect. As anonymous mentioned all stories were compelling and thought provoking!
TD in DC 4 October 2009 - 10:11pm
Excellent Show from beginning to end. I was particularly moved by "The Sendoff" by Sian Hughes. My wife and I confronted similar decisions while she was pregnant with identical twin boys. During an ultrasound, the doctor found that one of the twins was near the limit of an indicator for Down's Syndrome. The doctor kept insisting that we engage in invasive testing that, of course, could have created risks for both embryos, including the "healthy" twin. After much soul-searching, my wife and I decided not to even have any further tests, because we could not contemplate moving forward with any procedures that might be indicated by further testing. This seemed illogical to the doctor and we actually argued for awhile over the point. Finally, we had to say simply that "we are Catholic and our faith is inconsistent with the course of treatment you are advocating." Of course this isn't the way we approached the issue internally or amongst ourselves, but the doctor would not leave us alone until we brought religion into the discussion, and then I had the impression that we were viewed as slightly fanatical, which was just as disturbing to us. For the remainder of the pregnancy, we lived with the concern and questions about whether the one twin would have Down's. Fortunately, both were born very healthy (and at a shocking weight of 8 lbs 4 1/2 oz EACH), and I am so thankful each time I see Marc and Philippe. But I understand how someone could reach a different decision and how devastating it can be. Actually, I probably cannot fully comprehend the pain. I wish I could speak to Ms. Hughes, but I doubt I could say anything that would ease the pain or even that she would want to hear. In any event, the eloquence with which Ms. Hughes expressed her pain helps others see the world through new eyes, which is, in my opinion, the sign of a great work. Thanks for the show.
Greg Kelly 5 October 2009 - 8:49pm
To TD in DC, I'm the Editor of TSWI. Is there a way I can reach you directly and as soon as possible? My email is greg.kelly@rnw.nl Thanks, Greg
TD in DC 6 October 2009 - 1:35am
Greg, I have sent an e-mail. Thanks, TD
Anonymous 4 October 2009 - 7:03am
Excellent show - to die or not to die...all stories very compelling, from Canada via CBC.

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